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Thank you for visiting mighty-max.com, a site that was created in
memory of
our son's courageous fight against Hurler Syndrome. While this site
will
remain up as a way to remember our child, all future updates on
our story
can be found at:
http://mighty-max.blogspot.com/
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Mighty-max.com
is the online home for information regarding our son Max. Max has
been diagnosed with Hurler Syndrome, an incurable genetic disorder
that has resulted in our decision to help our son through a stem cell
transplant. This will be a long process, and it is our hope that this
can be a central place for our friends and family to get the latest
news about Max. We are also hopeful that other Hurler families that
are faced with the same decisions as us can find something here to
help them with the difficult road ahead.
MAX'S STORY
What you'll find here:
UPDATES: the latest news on Max and his progress.
OUR PHOTOS: the latest pictures and slide shows
GUEST BOOK: your chance to write to us and to offer
words of encouragement. (it's pretty isolating here in Minnesota
so kind words from afar really mean a lot)
ROAD TO RECOVERY: This section will be updated
slowly, we hope to occasionally take the time to digest some of
our diaries and notes and to offer some condensed versions of what
we've been going through.
WHAT IS HURLER SYNDROME?: An explanation of the
disease
RESEARCH / LINKS: A list of links and addresses
of places and people that have educated us so much.
FRIENDS WITH HURLER: People like us, with kids
like Max.
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