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Alease
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Saturday, March 12, 2005
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15:40
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I began researching Hurler's Syndrome because of a patient I two children I met last year. Their Father dedicated his life to them after their Mother walked out...I was devestated last year when Matt passed away at nine but not as much as when Britney passed away two days ago at the age of ten. I fear their Father has fallen into a deep depression. I truly grieve for all the children down trodden with this disease.
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United States
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by
heather gray
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Friday, March 04, 2005
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01:24
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i was very interested in your story as i was a bone marrow donor to a baby girl in canada last october
she too has hurlers syndrome
love and god bless
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United Kingdom
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by
Claire Santone
on
Friday, February 25, 2005
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16:05
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Thinking of you.
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Claire Santone
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Friday, February 25, 2005
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16:03
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Thinking of you.
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United States
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by
Laura Kutz
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Tuesday, February 22, 2005
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21:57
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Thinking of you all. Happy VERY belated birthday Grace! Hope you had a Happy Valentine's Day.
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United States
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by
the boehners
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Tuesday, February 15, 2005
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10:10
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thinking of you..........
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by
Lisa Post
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Friday, February 11, 2005
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12:17
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Margaret, Mike and Grace,
Wishing you a great Valentine's Day!
Hugs!
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United States
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by
csantone
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Sunday, February 06, 2005
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13:10
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Thinking of all of you.
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United States
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by
jordan butterfield
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Thursday, February 03, 2005
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20:14
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i am researching hurler for my 10th grade biology class and stumbled across this sight. it brought a tear to my eye seeing these children performing normal lifesyles even though they are fighting with it everyday
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by
kate jacobson
on
Wednesday, January 26, 2005
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06:38
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Hey thinking of you guys, happy belated to Grace. Your message is as eloquent as ever. Remember your light in Grace is a reflection of your love and time in her. Apples don't fall far from the tree!
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