How Can I Help?
                   
                       
   
     
 
       
       
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Many of you have asked "how can I help?" or said "let me know if there is anything we can do." While we are painfully aware that it is not easy to ask for or accept help from others, we have been strongly encouraged by those who have experienced transplant to be honest and ask for what you need. So here it goes ...

We need to hear from you! We know it is awkward for some people to approach us or write to us because they do not know what to say. But saying nothing at all is far worse. We need to know that people are pulling for Max and us so even if you say "I don't know what to say," it helps.

We need visitors in Minnesota! A Hurler mom we spoke to said "Refuse help from no one. If a college friend is willing to travel to bring you groceries and supplies or baby sit - let them." Let us know if you have the means and are interested in visiting beautiful Minnesota.

Having been through the experience of premature birth and now this, we strongly believe that even the slightest gestures make a huge difference in someone's life. We know that people's ability to help us will be somewhat limited by distance, but we have thought of other ways you can make a difference, not just for someone going through transplant, but for people experiencing other life challenges as well:

  • Donate long distance calling cards to a transplant unit so parents can keep in touch with loved ones far away.
  • Ask your company to donate used laptops to a BMT unit. Both Duke and Children's told us they used to have laptops in each room but they were worn out.
  • Cook! Volunteers bring meals to the Ronald McDonald House in MN every night. Consider dropping of a meal so parents of sick kids have one less thing to worry about. Drop off snacks at a local hospital NICU waiting room. On a smaller level, bring a meal to someone who is struggling with illness, who just had a baby, lost a job, etc.
  • If you are pregnant, consider donating cord blood, which is otherwise thrown in the garbage. You can save the life of a child like Max. For more information, visit The American Red Cross Cord Blood Bank (ARCCBB) and the National Marrow Donor Program's website has a list of cord blood banks by state.


  
         
         

         
     
 
     
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modified October 17, 2003 12:56 PM